A program for Rochester area families with children facing a potentially life limiting condition.
When a child is seriously ill, little else matters. That is why we created a program that surrounds children and families with every kind of support they need when they need it.
CompassionNet recognizes the stress that is placed on the whole family when a child is diagnosed with a life threatening illness. CompassionNet works through dedicated case managers to help families navigate through the health care system.
We have two goals: 1) to minimize suffering associated with the child's disease, and 2) to help the family cope effectively with the child's illness and treatment.
The case managers focus on the family's needs/goals and promote quality of life. They can connect families with services that may include counseling, respite care, day care, and they are authorized to arrange insurance coverage of support services or items that fall outside traditional health care benefits.
Our compassion is boundless. Our net is a network of people dedicated to helping families care for their sick children; it is also a safety net, to assure every form of support is available to anyone who needs it.
A child must meet ONE of the following:
The child must also:
There are NO additional charges associated with this program.
Referrals are generated by the child's pediatrician, specialist or nurse practitioner (Call (585) 214-1333 for a referral). The CompassionNet Case Manager arranges a meeting with all pertinent parties after determining the child's eligibility. If parents learn that one of their children has a life-threatening illness, CompassionNet will:
For more information about this program, call (585) 214-1333 or fax (585) 214-1207. Our nurses will respond to you, by telephone or mail, within 5 business days. If you need a more immediate response, please call us by telephone.
Brought to you by Excellus BlueCross BlueShield, Rochester Region, administered by Lifetime Care - previously known as Genesee Region Home Care (GRHC).